Friday, August 7, 2009

Little Fighter

Koen is having another good day today. Even though he is sedated, he amazes his nurses by all the kicking around he does! They are surpised at what a fighter he is! Koen is slowly being weaned off the ventilator and is scheduled to be off tomorrow. They will also be taking him of the sedative. We are so excited to see him awake again! Please pray that his lungs will be strong enough for him to breathe on his own. We know this step will make a night and day difference in our little guy! We are also praying that Koen will be moved out of the ICU within the next few days. It is great to see all the many IV's and tubes slowly going away! Koen is down to just a PIC line (which was put in yesterday) and his Medi-port as far as IV's are concerned. The PIC line is a kind of IV that can stay in as long as 6 months. It is inserted in the crease of his arm and actually goes up the vein all the way near his heart. The Medi-port is under the skin in his chest and is accessed by a needle. This is what is used to give Koen his Chemo treatments. We have greatly missed all the joy that our little Koen brings to our family. It's really all the little things that go mostly overlooked that are missed the most. We cannot wait for the moment when we can just see his big smile and hear him laugh! Please continue to pray for Kaitin and Gavin as this is just as hard on them as it is on us. Last night I was finally able to sit down at home and have dinner with them. Even though it was after 10:00 p.m. and just McDonalds the boys were so happy to be sitting at the table with their daddy. Kaitin and Gavin immediately grabbed each others hands and said "Let's pray dad!" Kaitin began praying "Please help Koen and Mommy to come home soon so we can all be together." Please continue to pray for strength for our family and for Koen's continued good response to his treatments. Please pray that his tumor shrinks quickly and that Koen will be able to come home soon. Lindsay and I would like to say thank you for your continued prayers and support. We would not get through this extremely difficult time without them! We take comfort in the fact that Koen is in God's hands and that God has continued to sustain Koen's strong fighting will. We will update you all on his progress tomorrow.



  1. Thank you for your updates. I don't personally know Koen or your family but yet I feel like I do. I have prayed for you daily and told my daughter and she too looks for your website to see the updates on Koen. She is trying to teach her 2 yr old to pray for Koen. Children are precious and may God continue to be with all your family. Janet

  2. Just wanted to let you know that I'm praying for your family. I know times like this are very difficult, but I also know that God will give you the strength to get through each day.

  3. Grant thank you for all the updates I am so thankful to God that He is doing great things. Our prayers will continue for all of you. God Bless you with a special blessing today. Joan Stewart