Koen had a GREAT night! He was up for awhile of it but was happy and watched a movie. He doesn't need oxygen anymore and is getting two of his lines out. They will move him to the oncology floor later today.
Koen is in surgery. It could take up to 6 hours for the surgeons to remove the mass. Please pray for God to guide the hands of the doctors and comfort and peace for his family.
Update Around 2:45pm~"Koen is stable and they have removed the gallbladder and getting ready to remove the tumor and the right lobe of the liver. Keep praying."
Update Around 4pm From Nana Stacy~"The tumor is out!! Koen is stable and only had to get one unit of blood. It was the size of a tennis ball which is much much smaller than before the chemo. They are finishing up and will begin closing up soon. Thank you for your prayers! Keep on Praying!!! Love you all."
Update Around 6pm update from Koen's Aunt. "Koen is out of surgery and doing well. Thank you to those who were praying."
Wow, Koen has just done extremely well this round of chemo. Normally with the start of chemo rounds he has all ready thrown up ten times and is just so horrible. This time he hasn't even thrown up once or even complained of nausea! I feel so BLESSED today and re assured that GOD is right besides us on this fight. Sometimes we forget this (guilty) I am just so Thankful to know such a Loving, Understanding caring GOD! Thank you to all that said a prayer for him to be able to handle the start of this round. You all have truly blessed me/us also! It's so comforting knowing your all praying and thinking about all of us. Your Koen's prayer warriors! THANK YOU! This is really sad, but I thought I would share it so you all know and remember to just keep those prayers coming and what alittle fighter he is. Koen just broke down in my arms today crying and just asking why and saying how unfair it was, etc. This is the first time that he's ever really just wanted to yell about it. He's gotten sad before and kind of tells you how unfair it was. But today it felt like I had a little person that totally got it today and was just breaking down in my arms. It is so unbelievable hard and I just wish I could take his place! I really pray that I at some point I will see God's plan in all this. He also, when he’s gotten mad at his brothers yelled at them how they should have to go the hospital all by themselves. Sorry if this brings tears to your eyes, but I just wanted you all too see how tuff this little boy is. Sometimes I think "man I just wish I could take his place but in the back of my head I'm saying "I don't know that I'm as strong as Koen is! He's so AMAZING and I couldn't be more proud of him!
Hi, everyone! Sorry I’m just now writing this update! Our life has just been pretty busy, stressful, tearful and yet happy. We try to take one day at a time and try to remember that even if that day seems to be horrible there’s always the next to start over. This chemo is so extremely hard on poor little Koen’s body that everyday is a pretty tough day for him.
This past weekend Koen had two of his BEST days he’s had in a long time. My guess is it had something to do with the fact that he hasn’t had the really hard chemo (cisplatin) for four weeks now. He was just so HAPPY and you could tell he was having no pain! Seeing this side of him again really makes me anxious for December 14th. Lord willing this will be Koen’s last treatment date!
As all of you know Koen along with all of us caught the swine flu. Gavin, Kaitin and I had it first and then Koen. I didn’t know it was the swine flu, as it didn’t really seem like flu. But I guess this whole swine flu stuff can be pretty nuts. Koen did end up in the hospital for 3 days with it and it has push back Koen’s chemo schedule. But he did fight it pretty well considering! They said the swine flu last from a week to two weeks; Koen only had it 5 days. Which brings me to a huge prayer request! I need the prayer, for me to have patience with some of the nurses. Some of them just can be such a huge pain! This one night he had this nurse that thought he just had to keep his pulse ox on all the time even though the nurse the night before didn’t care that he did. So she was at least in our room 10 times in a 12-hour shift to search for and find his pulse ox and put it back on. This drove me nuts cause we both got woke up every time, I finally told her at 4:30 in the morning that if he takes it off DO NOT put it back. Then the next day they all wondered why Koen slept the day away! It’s so frustrating and I’m trying so hard to find patience with them. But it is EXTREMELY HARD!
Koen will be admitted for his round 4 of chemo tomorrow (Thursday). This is so Bitter Sweet, As this means he’s not going to be feeling very well at all again with all the side affects. Also means we have to spend 3 days in the hospital again! Please keep all of in us in your prayers! But the sweet part is this means after round 4 he will have his surgery to remove the tumor. This also means only two more rounds of chemo! We are so looking forward to the day Koen is cancer free and has fought this battle and WON! Without God’s strength I don’t know how we would have made it though! I do not want to imagine this fight without him fighting along beside us!
Thank you all for the prayers! Please keep them coming!
They let Koen go home on Wednesday! His counts are up to 129. They just feel that since the counts are coming up and because he hasn't ran a fever for 48 hours it is safe enough for him to leave. Round 4 of chemo will be pushed back a week. They don't feel he is well enough to follow on schedule even if his counts happened to climb to 750 over night.
Koen seems to be doing a little better today although I just talked to the doctors and his counts have not gone back up but have fallen even more. They are now down to 26! Good News~~ We were able to still finish up round 3 of chemo yesterday. So now please pray his counts will stop dropping and climb. They have to be back up to 750 in order to start round 4 of chemo. Thank you all for the prayers! Please keep them coming.
They admitted Koen because his ANC was down to 150 which is extremely low. He doesn't have the flu so its some other sickness. They are doing tests to find out what. Please pray that he can recover quickly.
An update from Koen's Nana: Koen is doing as well as you can expect with all the chemo in him. Since he isn't feeling the greatest he requires a lot of Lindsay and Grant's time. They are trying to balance being parents of Kaitin (4) and Gavin (2) while holding Koen (3) most of the time. It is hard for both of them. Lindsay is completely worn out by the time Grant gets home and he takes over but with needing to be up early for work the next morning both are completely sleep deprived. Please lift them up in your prayers. Now for the good news. The cancerous tumor is shrinking and the surgery to permanently remove it is fast approaching. He will begin his fourth round of chemo the end of this week and surgery will soon follow sometime next month. Please pray for the chemo to stay on schedule for this series, Koen's strength to handle it well, Mommy and Daddy to stay strong and get some much needed rest and for the upcoming surgery to be a success. One more note: The hospital has banned all children under the age of 12 from being in the hospital. This means that during Koen's 3 day stay this week they can't see Koen at all and it will make it harder on Grant and Linds as usually they keep the boys with them and Koen seems to enjoy having them there. During the surgery which will require a longer hospital stay they can't be up there at all either.
AROUND 10PM~ Koen's Dad posted: "Please keep Koen in your thoughts and prayers. He is the ER sick with a really high fever!"
Koen was taken to the ER July 30th. He has been diagnosed with a Massive Hepatoblastoma Tumor of the liver. A biopsy was done on Aug. 2nd. Koen's family will know more about the journey they are facing after the results from the biopsy are back. Koen is at the Children's Hospital in Denver, CO.
If you would like to help with Koen's medical expenses you can send a donation to the Slovek's personally. A BIG thank you to everyone who has helped with some of his medical expenses.
The Slovek Family
The Slovek Family 3002 Willowrun Dr. Castle Rock, CO 80109
The Children's Hospital c/o Koen Slovek 13123 East 16th Avenue Aurora, CO 80045