Koen had been doing pretty good! Enjoying being off chemo, more of a break from the hospital, having an appetite again and just enjoying feeling more like himself again. As you all know he had his last appointment for oncology on January 11th. It didn't go quite as we had planned but so far turned out better than what we thought we might be hearing after leaving there. As long as his bile leak isn't affecting him with pain, abnormal blood counts or fever surgery will not happen. Where the leak is located would be too dangerous to do surgery, as the leak is close to the heart and hard to get to. So far he hasn't had any problem so we are praying it will heal its self. Also found out yesterday that he still will not have to go back in for another 2 1/2 months now. The 3 month break from the hospital didn't happen. On Monday night Koen for some reason thought he would climb up the bunk bed ladder to tell Kaitin goodnight lost his footing and fell off the ladder. We took him to the ER that night because he wasn't wanting to straighten his leg or put weight on it and was crying about it pretty good. Thanks to some well-trained people we were sent home after 3 hours in the ER with being told from what they saw on the X-Ray there was no break or fracture. Well I got a call the very next morning to be told to come in as they now thought he could have a fracture on his hip. It was very clear to Grant and I that there was something wrong with our little boy as pain medicine was barely getting him to fours before needing it again. So back to the ER we went spend all day there to find out NO he doesn't have a hip fracture but a fractured tibia. It was a VERY long day for us. Koen now has a cast all the way down his left leg. He's still in quite a bit of pain but not sure if its because he really hurts or from the anxiety of it all. We also found out that his surgery was scheduled for his port removable on Thursday the 21st. So were back to the hospital tomorrow for that. Praying everything will go smoothly! We are so ready for our little guy to have a break from all this stuff and be back to somewhat of a normal everyday lift. Looking forward to that day and still remembering how blessed to be where we are. Please keep those prayers coming as for some reason Koenis still getting hit with some battles. He will have to be in the cast for 4 weeks. We are getting him a walker hoping it will keep him encouraged to keep up the walking. This is something I'm really praying for as he was just getting his strength back in his legs and some fat on them. He also has another hearing test on February 11th to recheck his hearing and fix him up with hearing aids. For some reason I am still battling this whole thought of my baby having to wear hearing aids. I know it shouldn't be that big of deal but I just don't want him to have to worry about everything that comes with having hearing aids. I know God can repair his hearing and return it back to normal. This is something I'm really begging God for.
Koen was taken to the ER July 30th. He has been diagnosed with a Massive Hepatoblastoma Tumor of the liver. A biopsy was done on Aug. 2nd. Koen's family will know more about the journey they are facing after the results from the biopsy are back. Koen is at the Children's Hospital in Denver, CO.
If you would like to help with Koen's medical expenses you can send a donation to the Slovek's personally. A BIG thank you to everyone who has helped with some of his medical expenses.
The Slovek Family
The Slovek Family 3002 Willowrun Dr. Castle Rock, CO 80109
The Children's Hospital c/o Koen Slovek 13123 East 16th Avenue Aurora, CO 80045